JPF Home Page Forums General Messages General Message Forum Mike Caro

Wow that was a remarkable presentation. It's incredible what we can do when the focus and passion is pointed in a direction.
That is wonderful and very very promising for so many things, and so many people.

My BIGGEST problems are:

1- No Diagnosis, Nobody can tell me WHY in 14 years.
This is almost as frustrating as the problem itself.

2- Is my vestibular/balance problems connected to my weakness?
Weakness as in "Core Weakness" Can not support my own weight long. I believe it is, but...... who cares what I say or think.
I'm shushed in the doctors office when I quietly,gently and briefly try to explain things.

3- Are both associated with the fact that my neck and entire back are extremely stiff/tight/burning and in pain EVERY single day & night?

The weakness continues to get worse as does the rest. What used to help is helping less as time goes on & on.
The last Neurologist I saw Neurologist # 11 said he was not sure what my problem was "naturally" but thought it to be rare. He said a "neurological disease" of my brain/spine could be the cause. And that was not a good thing.

I asked if "injury/trauma could have brought it on?
He didn't think so, but once i said the word, sorry snuck in the word "JACKHAMMER" he said "jackhammer"? Hmmmm!

The reason I can not take all this doctors says to heart and mind is while he was at least caring and thorough. He would not listen. I ALWAYS give them space and room to think and do NOT bring my 14 years of frustration and disgust with me.
Just my one page PERFECT report sheet i designed, and my records and films. Or do I knock the other 56 doctors I have seen.

Here's why I have to watch and be careful

1. Maybe the doctor is BRILLIANT, but he still looked at his cell phone during the visit and said. "Hmmm who's this? who
s this 800 number"? Debating whether to answer it or not.
I quietly said. "It's a telemarketer doc" He answered anyway and guess what?

2. I don't mind being asked to or signaled to not speak but I know you didn't read my one page report. So I'm trying to give you clues... WHY? Because while your thinking about me for the first time EVER and answering cell phones, and the nurses and whatever else the other 40 patients before and waiting. THIS PROBLEM besides "Music" is ALL I think about.
Listen to me.... I know me & I'm a LOT more clever than I look and my level of education.

3. You asked me what a LONGSHOREMAN was? So you'll NEVER grasp the concept of "The Job" or the tires. I swear I have to bring the things I did at work into the doctors office with me. Including the 300 pound tires, 50lb Lug Gun, the 100lb Jackhammer
the sledge hammer, the welding machine and mask, and maybe the truck containers that i used to climb in to weld, the ones that stickers peeled off them that read POISON!
Huh? What? maybe no? Duh!

Then I'll leave him 8 hours with those things to deal with. But before I leave your office SHUT the heat off and open all the windows. Cause it's 20 below zero where I worked biotch! lol
Now do you think we should talk a little bit about what I did for 17 years?

4. The last doctor who saw me is the one who's report you WANT.
That guy didn't give me your number I asked for it by bringing up Cervical Vertigo. The guy did nothing and suggested nothing to me and John Daubert. He even ROLLED HIS EYES while i tried to tell him something.
But the doctor before spent 2 1/2 HOURS with me, and you said I don't know him. and don't want his report.

Several times today you made me question your JUDGMENT your common sense. You said things like "It must be rare if all those smart doctors couldn't give an answer" Really? Are you kidding.
Then he said HOW in the world could no one tell you anything, then at the end he says. "I don't know what to tell you"
Then you even questioned if i was exaggerating the problem for some reason... Holy crap!

I go back for ANOTHER EMG I did one two tears ago. Everything is a month or so apart so time just keeps wearing on me.

In the film seeing that lady run into the mall and jump off the escalator filled my heart with joy and emotion. Her VERTIGO is much worse than mine. AS I tip and fall but do not spin constantly. But I have the neck the back and the weakness..
The list of I can't do grows, standing up, and sitting up are the most frustrating then walking. Scary! as the tipping over is.

Separate Problems or NOT help with ONE please....
I'm WAY beyond what I thought I could take until the next level.
I miss my life

Thanks Mike
And God Bless

Mike
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