JPF Home Page Forums General Messages General Message Forum Thanks To A Special JPF Member - John Daubert

Thanks you guys!

John and I went back again today to see the same doctor. Thing was originally he said we wouldn't need to come back but he'd look at the new MRI's and call if anything.

So I called after about two weeks and the receptionist says " He needs to see you" I say "Well he said actually I didn't need to come back, so he must have seen something in my test results" She says well you need to make an appointment,thats all I know"

So okay he actually see's something and can tell me something. Naturally I would love to hear everything is FINE. But I know i got a problem. John knows and everyone else knows too So lets find out FINALLY what it is. I'm a bit anxious but ready!

We get there and he tells me "ZERO" he see's that I'm worse than I was last month, but says the neck & back aren't the cause of the...
Weakness
Constant Sinking (quicksand) feeling
Tipping,balance trouble

Next it's to the NYU Neurologist and what will be my 47 doctor.

Even John can't believe how "nowhere I get" as he is witness to this stuff lately. How do you crawl into a doctors office, with a cane holding on to whatever,back and neck shot and give DETAILS like do and get "nothing in return"

Now I gotta do a 3rd brain MRI and see another Neurologist like #12.

Recently I was really really "Rockying" through this crap despite thinking I couldn't. But I'm worn out,burned out, beyond frustrated and disgusted. The inability to not stop the sinking & weakness has made life just too hard. So much difficulty standing,walking and sitting up.
How I feel now makes how I felt when going to hospital five years ago seem like a picnic.

So thanks again John it's nice to spend time with you even if I'm not very myself, I miss so so many simple things and now it seems I'll have to start missing making music as well. Playing is just getting to difficult!

I feel like giving up, 13 years is a long long time but I NEVER give up.. because a chance at having even one good time period is always worth it, and hope for some good ahead can help make a bad past disappear.

I continue to keep all of you guys especially the ones with health issues in my thoughts and prayers.. And Brian get well!